We struggled to understand that look on a newborn, I remember even the nurses said they had never seen a baby look at her.
! How wrong we all were! Arnau not look sideways, had oculomotor apraxia and turned her head to see us, he wanted to know their environment and their eyes were not working but his intelligence made him look, with just a few hours of life in this world, and found a solution by turning his little head.
When Arnau began to move with great effort and could not move, when his eyes were following no precious objects, when he was diagnosed with Apraxia Oculomotara (OMA is the english abbreviation), we decided to look for information to something that some professionals did not even know. And for almost two years this blog emerged.
1 - Raise awareness of the Oculomotor Apraxia
2 - Support and help people who have it and their families if they need
3 - Find out why, when and how it is produced (OMA)
4 - Be informed of the progress of the Oculomotor Apraxia, their stages, their levels and the damages in different areas of physical and intellectual people who suffer
5 - Knowing that solutions, treatments, therapies and support is available right now for Oculomotor Apraxia
6 - Meeting other people with Oculomotor Apraxia to his life experiences and help us with it.
This blog has slowly grown and I can say I'm happy to have helped some people, but I will be happier if I know that apraxia is treated and that no one suffers.
Although there is no consensus yet in the world but people, mostly English speaking, having a support group on Facebook created by a wonderful person called Stephen and now managed, tracked and supported by great mothers of toddlers with Oculomotor Apraxia.
Somehow I want to make this little tribute to the people, especially mothers, whostruggle daily to make this world a better place and people with messages telling us how they live their lives and go forward, giving us a great relief (thanks to Nicole, Shannon, Stephen, for your messages etc) and this is reflected in the Facebook group and on their blogs.
Indeed, there is a google translator on the side of blog to read the blog in almost any language, but probably is not the best translation, although is always a help, in the same way that helps me with all the information you find in other languages.
But something I have clear, is that when Arnau ask me for responses at least I can give him some, the rest will take the road that maybe he will, but certainly does not end with a blog, since projects are not missing and wanted either.