Hola,
Rebecca tiene a Nyah, y Nyah tiene apraxia oculomotora. Rebecca es una madre que como muchas otras no nos conformamos con que nos digan: "Tu hijo o hija mueve la cabeza, tiene retraso motor ..." . Nosotras queremos saber más, queremos ayudar y queremos explicarles a nuestros hijos y al resto del mundo que es la Apraxia Oculomotora. Por eso Rebecca creó está web que ha permanecido en stand-by durante un tiempo pero que deseo que recupere pronto. Yo la pongo porque en ella hay testimonios de otros casos (muy pocos) de pequeños con apraxia oculomotora. Está en inglés pero con google translation o si me lo dicen se traduce. Y ahora os pongo la presentación de la web y el enlace.
Hello,
Rebecca has a daughter called Nyah and Nyah has ocularmotor apraxia. Rebecca is a mother who wants to know more about OMA and she create a web site, but this web was in stand-by for a few time and now I hope she will continue with it because she had done a great and important job.
I put the link and I copy a part of home greeting by this web.
Enlace / Link: Oma Awareness
El saludo de entrada / Home Greeting::
"Hello and Welcome to OMA Awareness!
This site was created after it was discovered that there are very few websites for people living with Ocular Motor Apraxia, be they family members of someone with the condition or someone with OMA themselves.
The aims of this website concentrate on three things -
1. To provide information about the condition
2. To offer support and advice to those living with OMA
3. To raise awareness
In this site you will find straight forward information on what Ocular Motor Apraxia is and how it can affect peoples lives. We also have a forum for visitors to ask questions, seek support and generally connect with others with similar experiences......"
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